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    #Hashtag Hong Kong

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    Listen to #Hashtag Hong Kong every Sunday morning at 8.15

    Focussing on issues affecting civil society, we'll hear from representatives of NGOs, associations, statutory bodies, and non-profit groups.

    (Sundays 8.15am - 8.25am)



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    Abi Tannis Porter, founder of the charity A Little Bit Extra
    16/03/2025
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    Abi Tannis Porter, founder of the charity A Little Bit Extra

    Good morning, Hashtag HK.

     

    As a mother of three, my husband and I have been blessed with our 6-year-old daughter Naima, and our 11-year-old twins, Ava, who is neurotypical, and Jacob, who has Down Syndrome. Throughout our parenting journey in Hong Kong, we've encountered various challenges—ranging from Jacob's prenatal diagnosis and the need for sensitive, comprehensive information about Down syndrome, to accessing essential health and developmental resources.

     

    The start of our journey wasn’t ideal. our doctor in the public sector at that time lacked the bedside manner and the training to sensitively discuss her findings of our 20-week scan, so instead she chose to go through her findings in silence, which unfortunately created a huge sense of unease and nervousness as first-time parents. What should have been a momentous and memorable visit ended up being a confused and daunting encounter where we were left with many questions unanswered and were instead given a bunch of leaflets on Down syndrome to go home and read.  

     

    We gathered information from a range of diverse sources, such as parent blogs and Down syndrome charities. The challenge of organizing this wealth of information inspired me to create A Little Bit Extra: a centralized resource platform dedicated to providing the latest information, fostering connections, and offering support for the Down syndrome community.

     

    One of our goals at ALBE is to work with maternity units within public hospitals to ensure expectant and new parents have access to ongoing support and contemporary accurate information regarding Down syndrome.  We aim to provide training and resources to health care practitioners to ensure they understand the lived experience of having Down syndrome and realise the importance of their language and attitudes when speaking of Down syndrome. 

     

    There appears to be a real lack of understanding Down syndrome as an individual condition as it is often grouped under a general disability. This then leads to a lack of awareness as to what it truly means to be born with this condition and how to fully support those with down syndrome medically, within the educational arena and within the job market.

     

    A huge emphasis is placed on early intervention for any child that has an additional need, however often parents are left to fend for themselves once their child reaches school age, as there is a real lack of inclusive activities available for our children and in particular as our children grow to become teenagers and young adults many are left to feel quite alone and isolated.

     

    During Jacob’s early years we were provided with fortnightly occupational therapy, speech therapy and PT (physical therapy) sessions which were an absolute godsend as it helped to alleviate the financial pressures of the private therapy sessions we were giving him. However, after two years these were ceased which is frustrating as both occupational therapy and speech therapy are essential for Jacob’s development and something he will require until he’s an adult. The monthly expense of therapies is a significant financial burden for many parents.  

     

    There is estimated to be 3000 individuals with Down syndrome in Hong Kong and it will be our mission to seek out our friends and their families within our community to ensure they are able connect, engage with others and feel supported within our community.

     

    Our biggest support has been the family network here in HK.  When Jacob was born and was admitted to Queen Mary Hospital we were appointed a social worker who then put us in touch with the Hong Kong Down Syndrome Association who in turn connected us with a number of families here in HK which was invaluable for us at the time and we have built and maintained some beautiful friendships. This support and connection is something that we will continue to nurture through A Little Bit Extra. 

     

    To enhance the support for individuals with Down Syndrome in Hong Kong, we request the support of the government in the following key areas:

     

    ●        Enhance Education and Training: Implement comprehensive education and training programs in hospitals so healthcare professionals can deliver diagnoses sensitively, using language that is both respectful and non-discriminatory during scans and upon delivery.

     

    ●        Expand Therapy Support: Increase subsidies for therapy sessions, particularly for children aged 5 to 11, ensuring they receive essential support beyond early childhood to foster their development and integration.

     

    ●        Promote Awareness and Acceptance: Officially recognize Down Syndrome as a distinct condition to elevate awareness and acceptance. This initiative will educate healthcare professionals, school educators, and corporations, encouraging inclusive employment practices.

     

    ●        Alleviate Caregiver Concerns: Address the longstanding worry of caregivers regarding the future of their children by providing structured support systems, ensuring a secure and supportive environment for individuals with Down Syndrome as they transition into adulthood.

    March 21 is World Down Syndrome Day. Please wear bright and bold coloured socks on this day to raise awareness and let us work together to build an inclusive and supportive community for individuals with Down Syndrome and their families. 

    16/03/2025 - 足本 Full (HKT 08:15 - 08:30)

    16/03/2025 - Abi Tannis Porter, founder of the charity A Little Bit Extra

    重温

    CATCHUP
    01 - 03
    2025
    香港电台第三台

    16/03/2025

    Abi Tannis Porter, founder of the charity A Little Bit Extra

    09/03/2025

    Inès Gafsi - Inspiring Girls Hong Kong

    02/03/2025

    Grace Chan, Art Therapist at the Providence Garden for Rehab, The Hong Kong Sheng Kung Hui Welfare Council

    23/02/2025

    Dr. Kelvin Ho, the Founding President of Hong Kong Organ Transplant Foundation

    16/02/2025

    Tom Ng, a Climate Campaigner at Greenpeace

    09/02/2025

    Nanki Luthra, Project Manager of the Ethnic Minority Well-being Centre, The Zubin Foundation

    02/02/2025

    Michael Lau, Founder, Hong Kong Wetlands Conservation Association

    26/01/2025

    Steph Ng, Founder and Executive Director of Body Banter

    19/01/2025

    Jenmon Jenkins, Community Director - the Society for the Prevention of Cruelty to Animals in Hong Kong

    12/01/2025

    Ivy Leung, Executive Director, CarbonCare InnoLab
    X

    Tom Ng, a Climate Campaigner at Greenpeace

    Good day, listeners!

    You have probably seen the shocking news about wildfires tearing through Los Angeles, California. These disasters are not just ‘bad luck’—they’re a warning sign for all of us.

    This is Tom Ng from Greenpeace Hong Kong. Today, let’s talk about something urgent: climate change. Climate change is here, and extreme weather is hitting communities everywhere, from burning forests in California, to flooded streets in Hong Kong. The weather we once called ‘normal’ is gone. We need to act now—not just to protect ourselves, but to give future generations a fighting chance.

    Since early 2025, neighborhoods in California have been swallowed by flames, families displaced from homes, and firefighters pushed to their limits.

    These are not ordinary wildfires—they are the second-most destructive fires in California's history.

    We might have heard that wildfires are a natural part of California’s ecosystem. Yet, California’s fire seasons usually peak from July to September due to dry summers, high temperatures, and low humidity. But this time, the winter wildfire was supercharged by climate change. As the planet heats up, California is getting hotter and drier all year round.

    Last year, California shattered temperature records—hitting over 43°C in many areas! Extreme heat sucks moisture from plants and soil. Scientists said that vegetation in fire-prone zones got 25% drier than it would be without climate change. Imagine green forests turned into kindling—that is exactly what’s happening.

    But heat alone doesn’t explain the crisis. Climate change also twists weather patterns as well.

    In the last decades, the western U.S.A., including California, suffered a severe drought that ended just two years ago. Then came the unusually wet winters in 2022 and 2023, triggering explosive growth of grasses and shrubs. But then 2024, the world’s hottest year on record, California faced a brutal dry spell. The region saw almost no rain after May, leaving all that new growth bone-dry and ready to be burned.

    Would these winter fires still happen without climate change? Possibly—but they might be smaller, slower, and easier to contain. Experts suggested that human-caused warming has doubled the risk of extreme wildfires in California. This isn’t just theory: data shows that 75% of the state’s 20 most destructive wildfires occurred within the past 10 years.

    Yet, California is not alone. From Australia’s 'Black Summer' fires to the Siberian Wildfires burning at record rates and scale, climate change is fueling disasters globally.

    Hotter temperatures, longer droughts, and unpredictable rain patterns create a vicious cycle: drier land, more flammable vegetation, and faster-spreading fires. What we’re witnessing is a new era of climate-driven disasters— ones that spiral beyond our ability to control them.

    You might ask: ‘Why care about California’s fires? We don’t have that kind of wildfire here in Hong Kong.’ But climate change doesn’t play favorites. While Hong Kong’s crisis looks different, it’s just as real.

    Last year, Hong Kong saw 11 months warmer than average, with April and October hitting record highs. 2024 was the hottest year ever for us in Hong Kong, mirroring global trends.

    It’s not just heat. In the autumn of 2023, back-to-back typhoons and record-breaking rains flooded streets and subways, shutting the city down for days.

    These disasters affected everyone in the city, but hit vulnerable groups hardest:

    Families in airless sub-divided flats, elderly without cooling, and outdoor workers working under summer heats. And those who had to rush to work, or even work under typhoons and heavy rain conditions. They have the less ability to prepare for and cope with climate hazards

    They are the group that consumes less, drives less, and pollutes less than wealthy groups.

    Yet, they face the highest risks.

    When facing human-caused climate change, it isn’t just about saving and planting trees, it is also about protecting those who did the least to cause this crisis.

    Greenpeace is urging stakeholders around the globe to take immediate action, and in Hong Kong, we demand the government include a clear roadmap to the 2050 decarbonization target, investments in solar and wind energy, and to implement policies to protect vulnerable communities from climate impacts.

    However, tackling climate change isn’t just the responsibility of governments or NGOs.

    Each of us has a role to play. Whether to reduce our own carbon footprint, Or to support local climate initiatives, Or just simply raise awareness about these issues, every action counts. The climate crisis is the defining challenge of our time, and it is gonna take all of us working together to overcome it.

    Before I sign off, I’d like to dedicate a song to everyone who’s fighting for a better, greener future. It’s Big Yellow Taxi by Joni Mitchell. You’ve probably heard the line: ‘Don’t it always seem to go, that you don’t know what you’ve got till it’s gone.’ It’s a reminder to cherish what we have before it’s too late—our forests, our oceans, our clean air.

    At Greenpeace, that’s what we’re working to protect. Thank you for listening. Let’s keep pushing for a world where people and nature thrive. This is Tom Ng from Greenpeace Hong Kong. Stay safe, stay loud, and let’s build a greener future together

    香港电台第三台

    16/02/2025 - 足本 Full (HKT 08:15 - 08:30)

    16/02/2025 - Tom Ng, a Climate Campaigner at Greenpeace